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Compassionate Allowance Outreach Hearing on Cancers - Agenda and Testimony

April 7, 2008

9:00 - 9:30 a.m.    Opening Statements
  • Michael J. Astrue, Commissioner of Social Security
  • Robert G. Urban, Ph.D., Executive Director, Koch Institute for Integrative Cancer Research at MIT
  • Julia H. Rowland, Ph.D., Director, Office of Cancer Survivorship, National Cancer Institute
  • David A. Rust, Deputy Commissioner for Retirement and Disability Policy, Social Security
  • Manuel J. Vaz, Regional Commissioner, Boston, Region One, Social Security [statement]
  • Carol A. Sax, Regional Chief Administrative Law Judge, Boston, Region One, Social Security

9:30 - 10:30 a.m.    Diagnosis and Treatment

  • Edward J. Benz, Jr., M.D., President, Dana-Farber Cancer Institute [testimony]
  • J. Leonard Lichtenfeld, M.D., Deputy Chief Medical Officer, American Cancer Society [testimony]
  • Bruce A. Chabner, M.D., Clinical Director, Massachusetts General Hospital Cancer Center [testimony]

10:30 - 10:45 a.m.    Morning Break

10:45 - 12:00 p.m.    Navigating the Disability Process

  • Nancy Davenport-Ennis, Chief Executive Officer and President, Patient Advocate Foundation [testimony]
  • Deborah Morosini, M.D., Spokesperson, Lung Cancer Alliance [testimony]
  • Megan Gordon Don, Director, Government Affairs, Pancreatic Cancer Action Network [testimony]
  • Frances Sabella, Cancer Survivor, American Cancer Society [testimony]

12:00 - 1:30 p.m.     Lunch Break

1:30 - 2:30 p.m.       Transfer of Medical Information

  • Thomas Yates, J.D., General Counsel, Health and Disability Advocates [testimony]
  • John Halamka, M.D., CIO, Harvard Medical School, and Chair, U.S. Healthcare Information Technology Standards Panel [testimony]
  • Kenneth Mitchell, Ph.D., Vice President, Health and Productivity Development, Unum [testimony]

2:30 - 3:00 p.m.        Afternoon Break

3:00 - 4:00 p.m.        Children and Cancer

  • Denise Williams, LCSW, Social Work Department, St. Jude Children's Research Hospital [testimony]
  • Diana S. Beardsley, M.D., Ph.D., Associate Professor, Department of Pediatrics, Yale School of Medicine [testimony]
  • Vince Haight, Parent of a Pediatric Cancer Patient

4:00 - 4:30 p.m.         Closing Remarks

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