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Compassionate Allowance Outreach Hearing on Early-Onset Alzheimer’s Disease
and Related Dementia

Chicago, IL
July 29, 2009

 

Resources
Hearing Notice Get Accessible Adobe Acrobat Reader
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Captioning
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9:00 - 9:30 a.m.
 Opening Statements
  • Michael J. Astrue, Commissioner of Social Security Administration
  • Marie A. Bernard, M.D., Deputy Director, National Institute on Aging (NIA), National Institutes of Health (NIH)
  • David A. Rust, Deputy Commissioner for Retirement and Disability Policy, Social Security Administration
  • David Foster, Deputy Commissioner for Disability Adjudication and Review, Social Security Administration
  • James F. Martin, Chicago Regional Commissioner, Social Security Administration
9:30 - 10:30 a.m. 
 Overview of Early-Onset Alzheimer’s Disease and Related Dementia
  • Harry Johns, MBA, President and CEO, Alzheimer’s Association [testimony]
  • David Bennett, M.D., Director, Rush Alzheimer’s Disease Center, Rush University Medical Center [testimony]
  • Michael Weiner, M.D., Director, Center for Imaging of Neurodegenerative Diseases, San Francisco Veterans Affairs Medical Center [testimony]
  
10:30 - 10:45 a.m.
 Morning Break         
10:45 – 11:45 a.m.
 Early-Onset Alzheimer’s:  Today and Tomorrow
  • John Morris, M.D., Director and Principal Investigator of the Alzheimer’s Disease Research Center, Washington University School of Medicine [testimony]
  • Dan Marson, J.D., Ph.D., Professor of Neurology, Alzheimer’s Disease Research Center, University of Alabama at Birmingham [testimony]
  • Susan Frick, MSW, Rush Alzheimer’s Disease Center, Rush University Medical Center [testimony]
  
12:00 – 1:30 p.m.
 Lunch Break  
1:30 – 2:30 p.m.
 Related Early-Onset Dementia:  Primary Progressive Aphasia
  • Marek-Marsel Mesulam, M.D., Director, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University [testimony]
  • Sandy Weintraub, Ph.D., Director of Neuropsychology, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine [testimony]
  • Darby Morhardt, MSW, LCSW, Director of Education, Cognitive Neurology and Alzheimer's Disease Center,
    • Northwestern University Feinberg School of Medicine [testimony]
 
2:30 - 3:00 p.m.
 Afternoon Break  
3:00 - 4:00 p.m.
 Individuals with Early-Onset Dementia and their Families
  • Jay and Laura Jones, Individual Diagnosed with Early-Onset Alzheimer’s Disease and Wife [testimony]
  • Joyce Simons, Individual Diagnosed with Mixed Dementia [testimony]
  • Mary Beth Riedner, Wife of Individual Diagnosed with Primary Progressive Aphasia [testimony]
  
4:00 - 4:30 p.m. 
 Closing Remarks  
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Last reviewed or modified Friday Nov 13, 2009
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